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Ongoing Research Projects

To request information or brochure for any of the following studies
Email: Research_Registry@unc.edu

Longitudinal MRI Studies of Brain Development

Principal Investigator: Joe Piven, M.D.

Participants: male toddlers and preschoolers (18 to 42 months) with fragile X syndrome, developmental delay, autism, and typical development

Participants complete a three to four day evaluation including behavioral and cognitive testing and structural brain imaging (MRI). Practice materials and hands-on training will be provided prior to completion of the MRI scan. A similar evaluation will be conducted 24 months later.

Participants will receive compensation of up to $400 and will be reimbursed for travel related expenses.

This is a collaborative effort with the Stanford Longitudinal MRI Study. Families living west of the Mississippi are invited to participate at Stanford.

 

The Carolina Communication Project: Speech of Males with Fragile X Syndrome

Principal Investigator: Joanne Roberts, Ph.D.

Participants: boys 8-13 years old with fragile X syndrome, boys 6-13 with Down Syndrome, and boys 2-13 years old who are typically developing who live in a 400 mile radius of Chapel Hill, NC.

Participants complete speech language and hearing assessments during in-home visits or at the Frank Porter Graham Child Development Institute in Chapel Hill, NC.

Travel expenses to and from FPG are paid by the Project. A small financial compensation will be given for completed assessments.

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NIH Fragile X Center: Family Adaptations to Fragile X Syndrome

Principal Investigators: Don Bailey, Ph.D. , Deborah Hatton, Ph.D. , Joe Piven, M.D.

Participants needed: African American families of boys and girls (birth to 12 years old) who have fragile X syndrome and live in the continental United States.

Project staff visit families to conduct behavioral and developmental child assessments and parent interviews. Financial compensation for participation is offered.

 

Ongoing Research Projects

  • Attention, Memory, and Executive Function in FXS
  • Family Adaptation to Fragile X Syndrome (FXS)
  • Longitudinal Studies of Young Boys with Fragile X Syndrome (FXS)
  • Newborn Screening
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