How To Support Individuals with Fragile X


link to Home
link to What Fragil X is
link to What is known
link to Supporting ing individuals
link to Hot topics
link to Search for resources
link to About this project

  • Fun & Recreation

    • Inclusive Recreation and Leisure Activities for Individuals with FXS
      •
      • Including Individuals With Fragile X Syndrome in Community Recreation and Leisure Programs
      • Inclusive Recreation for Young Children
      • Inclusive Recreation for School-Age Children
      • Inclusive Recreation for Adults

    • Specialized Recreation and Leisure Programs for Individuals with FXS
      •
      • Specialized Recreation for Children
      • Recreation Programs for Adults

  • Family support

    • Entitlements
      •
      • Social Security
      • Medicaid

    • Finding Information and Support
      •
      • Finding Information
      • Reaching Out for Support and Information
      • Where to Go When Support Groups and Resources Are Not Enough

    • Finding Time for Yourself and Other Members of Your Family (Respite)
      •
      • What is Respite?
        •
      • Traditional Respite Options
        •
      • Ideas for Creative Respite Solutions
        •
      • Special Considerations When Using Respite Care for Children With Fragile X Syndrome
        •
      • Questions to Ask When Considering Respite Options
        •

  • Thinking About the Future

    • Legal and Financial Planning for a Secure Future
      •
      • Estate and Financial Planning
      • The Question of Guardianship
        •

    • Planning For a Healthy Social/Emotional Life
      •
      • Circles of Support
      • Self Advocacy
      • Sexuality

    • Planning for Independence at Home and Work
      •
      • Residential Options
        •
      • Employment and Day Support Options

  • Therapies

    • Occupational Therapy
      •
      • Occupational Therapy for Individuals With Fragile X Syndrome
        •

    • Physical Therapy
      •
      • Physical Therapy for Individuals With Fragile X Syndrome
        •

    • Speech-Language Therapy
      •
      • Speech and Language Therapy for Individuals with Fragile X

  • Educational Transitions

    • Early Transitions
      •
      • Transition from Early Intervention to Preschool
      • Transition from Preschool to Elementary School

    • Entering Adulthood
      •
      • Transition From School to the Adult Service System

    • School Age Transitions
      •
      • Transition from Elementary School to Middle School or Junior High School
        •
      • Transition from Middle or Junior High to High School

  • Social Skills

    • Development of Social Skills in Young Children with FXS
      •
      • Social Development in Infants and Preschoolers (ages 0-5)
      • Social Development in School-Aged Children (ages 6-12)

    • Social Skills in Older Individuals with FXS
      •
      • Social Skills in Adolescents (ages 13-18)
      • Social Skills in Adults (ages 19+)

  • Education

    • Educational Information Specific to Fragile X Syndrome
      •
      • Educational Modifications for FXS
      • Academic and Instructional Strategies for FXS

    • Information About Special Education
      •
      • General Information About Early Intervention and Special Education Services
      • Importance of High Quality Classrooms
      • Inclusion Options

  • Sibling Issues

    • The Special Role of Siblings
      •
      • The Special Relationship Between Individuals with FXS and their Siblings
      • How Siblings Can Effectively Participate In and Contribute to the Future of the Individual With FXS
        •

    • Tips and Resources
      •
      • Parent Tips for Supporting Siblings
      • Resources

  • Toilet Training

    • Resources
      •
      • Books to Read to Children About Potty Training

    • Steps to Toilet Training
      •
      • Specific Steps to Toilet Training a Child With Fragile X Syndrome

  • Disability Laws

    • Laws Affecting Individuals with Disabilities
      •
      • The Americans with Disabilties Act (ADA)
      • Additional Laws Affecting Individuals With Disabilities

    • Laws Affecting the Education of Children with Disabilities
      •
      • The Individuals With Disabilities Education Act (IDEA)
      • No Child Left Behind


Home | Suggestions | Site Map

link to Carolina Fragile X Project web site FPG Child Development Institute
800.351.4603
University of North Carolina at Chapel Hill
Campus Box 8180
Chapel Hill, NC 27599-8180 		UNC Logo & Link