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Fragile X Education: Resource List
Books & Pamphlets
- The Fragile X Child. (1992).
B.B. Schopmeyer & F. Lowe. Singular Publishing Group, 4284 41st
Street,San Diego, CA 92105-1197 (800) 521-8545.
- Educating Boys with Fragile
X Syndrome. (1994). G.A. Spiridigliozzi, A.M. Lachiewicz, C.
S. MacMurdo, A. D. Vizoso, S. M. O'Donnell, A. McConkie-Rosell,
& D. J. Burgess. Gail Spiridigliozzi Child Development Unit
Box 3364, Duke University Medical Center, Durham, NC 27710. (919)
684-5513.
- Behavior and Development in
Fragile X Syndrome. (1994). E. M. Dykens, R. M. Hodapp, &
J.F. Leckman. Sage Publications, 2455 Teller Road, Thousand Oaks,
CA 91320.
- A Parent's Guide to Drug
Treatment of Fragile X Syndrome. (1995). Michael R. Tranfaglia.
FRAXA Research Foundation, PO Box 935, West Newbury, MA 01985 (508)
462-1990.
- Fragile X Syndrome: Diagnosis, Treatment,
and Research, Second Edition. (1996). R. J. Hagerman &
A. Cronister. Johns Hopkins University Press, 2715 N. Charles
St., Baltimore, MD 21218-4319. (410) 516-6956.
- Fragile: Handle With Care & Understanding
Fragile X Syndrome. (1996). Marcia Braden, 100 E. Saint Vrain,
Suite 200, Colorado Springs, CO 80903 (719) 633-3773
- Children with fragile X syndrome:
A Parent's Guide. (2000). Jayne Dixon Weber. Woodbine House,
6510 Bells Mill Road, Bethesda, MD 20817 (800) 843-7323.
Newsletter
- The Foundation Quarterly, National Fragile X Foundation. See contact information below.
Resource Centers
- National Fragile X Foundation, P.O.
Box 190488, San Francisco, California 94119, (800) 688-8765 or (510)
763-6030, Fax (510) 763-6223, www.nfxf.org
- FRAXA Research Foundation, 45 Pleasant
Street, Newburyport, Massachussetts 01950, (978) 462-1866, Fax (978)
463-9985, www.fraxa.org, email: info@fraxa.org
Articles on Young Children with FXS
- Bailey, D. B., & Nelson, D. (1995).
The nature and consequences of fragile X syndrome. Mental Retardation
and Developmental Disabilities Research Reviews, 1, 238-244.
- Bailey, D. B., Hatton, D. D., Mesibov,
G., Ament, N. & Skinner, M. (in press). Early development, temperament,
and functional impairment in autism and fragile X syndrome. Journal
of Autism and Developmental Disorders.
- Bailey, D. B., Hatton, D. D., &
Skinner, M. (1998). Early developmental trajectories of males with fragile
X syndrome. American Journal on Mental Retardation, 103, 29-39.
- Bailey, D. B., Mesibov, G., Hatton,
D. D., Clark, R. D., Roberts, J. E., & Mayhew, L. (1998). Autistic
behavior in young boys with fragile X syndrome. Journal of Autism
and Developmental Disorders, 28, 499-508.
- Freund, L. S. (1994). Diagnosis and
developmental issues for young children with fragile X syndrome. Infants
and Young Children, 6(3), 34-45.
- Hagerman, R. J. (1992). Annotation:
Fragile X syndrome: Advances and controversy. Journal of Child Psychology
and Psychiatry, 33(7), 1127-1139.
- Hatton, D. D., Bailey, D. B., Jr.,
Hargett, M. Q., Skinner, M., & Clark, R. D. (1999). Behavioral
Style of Young Boys with Fragile X Syndrome. Developmental Medicine
and Child Neurology, (41)1-8.
- Hatton, D. D., Buckley, E. G., Lachiewicz,
A. M., & Roberts, J. E. (1998). Ocular status of boys with fragile
X syndrome: A prospective study. Journal of the American Association
for Pediatric Ophthalmology and Strabismus, (2)298-302.
- Mazzocco, M. & O'Connor, R. (1993). Fragile X syndrome: A guide for teachers of young children. Young Children, (November 1993) pp.73-77.
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