People with Disabilities

The Health Promotion Resource Guide includes an introductory section on accessibility followed by topic-specific sections which highlight resources that can be integrated into commonly available state and community health promotion initiatives. Many of the resources have been created for the general population or for a target population of individuals with specific disabilities. In most cases, the information that is available on a health promotion topic for the general population is applicable to people with disabilities. Resources designed for a condition- specific population can often be generalized for a larger audience. We strongly encourage readers to review the accessibility section before proceeding to the specific health promotion topics. Unless issues of accessibility (environmental and communication) have been anticipated and addressed, even highly motivated individuals with disabilities may be unable to utilize and fully benefit from health promotion opportunities.

Health Promotion Resource Guide

Whether you are working in state health promotion program planning, disability services, or community service delivery, see yourself as a disability specialist or a disability "novice," you should find the Health Promotion Resource Guide full of useful resources. We hope that as the field of health promotion for people with disabilities expands, there will be an even richer repository of knowledge and resources from which to draw inspiration, ideas, and effective interventions.

Health Promotion Resource Guide

Accessibility 1

Communication 7

Disability and Healthy Living 15

Physical Activity 23

Nutrition 33

Substance Abuse 42

Women’s Health 50

Violence 59

Sexuality & Relationships 64

Parenting 69

Cancer Screening 72

Safety and Emergency Preparedness 75

Mental Health 80

Aging 83

Transition for Youth with Disabilities 92

Health Promotion Resource Guide 1

Inclusion for all persons is made possible by an environment free of physical, attitudinal, and communication barriers. For people with disabilities, inclusion in health promotion efforts continues to be limited by inaccessible programs and facilities. While the Americans with Disabilities Act (ADA) is a federal law requiring equal access to services for people with disabilities, Universal Design encourages programs and facilities to be responsive to and useable by everyone, regardless of their abilities. Excellent resources related to the ADA and Universal Design exist, providing practical information on making environments and programs accessible. Specific strategies for addressing communication access can be found on pages 11-18.

This network of regional ADA technical assistance centers, sometimes called Disability Business Technical Assistance Centers (DBTACs), is a comprehensive resource for information, materials, technical assistance, and training on the ADA. These centers are well suited to providing health organizations with assistance in making programs accessible and compliant with ADA. Information is provided regarding topic areas such as ADA information (such as Title I, II, III, IV, and V regulations), technical assistance manuals, videos, and publications in multiple languages. The web site and toll free number below provide ADA information, links including an extensive list of publications, and a means to connect to your regional center.

ADA Technical Assistance Program

800-949-4232 (V/TTY)

www.adata.org/dbtac.html

This center works to protect and advance the civil rights of people with disabilities. It provides litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities. DREDF web site contains a list of ADA publications, which are general in nature and designed for use in education and training programs (Click on "Publications").

DREDF

2212 Sixth Street

Berkeley, CA 94710

510-644-2555 (V/TTY)

www.dredf.org

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This federal agency, also known as the Architectural Transportation and Barriers Compliance Board, provides technical assistance, training, and research on accessible design. The Access Board develops and disseminates Accessibility Guidelines and Standards, which are minimum guidelines for standards issued under the ADA. The web site includes these standards and other publications related to access of facilities, public rights-of-way, transportation, and communication.

The Access Board

1331 F Street, NW, Suite 1000

Washington, DC 20004-111

800-872-2253

800-993-2822 (TTY)

Email: info@access-board.gov

www.access-board.gov

The Disability Rights Section of the Department of Justice (DOJ) carries out the mandates of the ADA through regulatory, mediation, and technical assistance activities. The DOJ provides information to help increase understanding and compliance of the ADA by phone or through their web site and the ADA information line. Publications are available on the DOJ web site or can be ordered through the ADA Information Line.

United States Department of Justice

950 Pennsylvania Avenue, NW

Washington, DC 20530-0001

Email: AskDOJ@usdoj.gov

www.usdoj.gov/disabilities

ADA Information Line

800-514-0301

800-514-0383 (TDD)

This free consulting service provides information and ways to provide job accommodations for people with disabilities. Many of the accommodations are applicable in a variety of circumstances, including health settings. In addition to online publications, JAN provides a searchable online accommodation resource (SOAR) and a toll-free number for more information.

Job Accommodation Network

800-526-7234 (V/TTY)

www.jan.wvu.edu

Health Promotion Resource Guide 3

NCODH has developed a series of Removing Barriers publications to address strategies for improving accessibility and supporting the concept of Universal Design in health care and other community settings. The series of publications provides guidelines and recommendations on how to improve both the physical environment and communication with people with disabilities. Publications can be downloaded from the web site or ordered from the office. Publications in this series include:

North Carolina Office on Disability and Health,

FPG Child Development Institute, University of North Carolina at Chapel Hill

Campus Box 8185

Chapel Hill, NC 27599-8185

FAX: 919-966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

This disability policy consultant has developed and collected resources that promote accessibility of facilities and programs. Her web site contains a list and description of publications, in addition to other online resource links. (Click on "ADA" and "Universal Design"). Publications include:

June Isaacson Kailes, Disability Policy Consultant

6201 Ocean Front Walk, Suite 2

Playa del Rey, CA 90293-7556

310-821-7080

www.jik.com

Means ADA Compliance Pricing Guide: Cost Data for 75 Essential ProjectsThis guide contains 75 most commonly needed modifications for ADA Compliance with cost information. For each modification there are illustrations, design requirements, suggestions, and detailed estimates (Click on "Bookstore").

R.S. Means Company100 Construction Plaza, Kingston, MA 02364-0800 800-334-3509www.rsmeans.com

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This organization provides numerous educational materials on living with a disability and preventing secondary conditions for individuals with spinal cord injury and other disabilities. In addition to health related topics, this organization provides consumer-focused information on the ADA (Click on "Publications"). Publications include:

PVA

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

The Arc of the United States, an organization for people with developmental disabilities, provides numerous educational materials including information on the ADA. Publications can be downloaded from The Arc web site. (Click on "Resources", then "Publications").

The Arc of the United States

1010 Wayne Ave., Suite 650

Silver Springs, MD 20910

301-565-3842

www.TheArc.org

The National Rehabilitation Hospital has several publications that address the obligations of health care facilities under the ADA. Although not available on the web site, these publications may be ordered from their office:

National Rehabilitation Hospital

Center for Health & Disability Research1016 16th Street, N.W., Suite 400Washington, DC 20036202-466-1900

www.nrhchdr.org

Health Promotion Resource Guide 5

This non-profit organization was established to assure the accessibility and civil rights of individuals who are Deaf and hard of hearing. The web site contains information on topics such as American Sign Language and the legal rights of people who are Deaf and hard-of-hearing.

NAD

814 Thayer Avenue

Silver Spring, MD 20910-4500

301-587-1788

301-587-1789 (TTY)

Email: NADinfo@nad.org

www.nad.org

The foundation has materials that address accommodations required by the ADA relating to the specific needs of people who are blind, Deaf-Blind, or have low vision. The web site contains information on environmental access, access to information, and access to visual media for individuals with vision loss. (Click on "Information Center"). Publications include:

AFB

11 Penn Plaza, Suite 300

New York, NY 10001

800-232-5463

www.afb.org

Universal Design is the concept of designing all products and the built environment to be aesthetic and useable to the greatest extent possible by everyone, regardless of their age, ability, or status in life. Employing Universal Design from the onset prevents the need to retrofit environments and in most cases eases confined spaces and makes objects easier to interact with for everyone.

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The Center is a national research, information and technical assistance center that evaluates, develops, and promotes universal design in housing, public and commercial facilities, and related products. It provides publications that address all areas of Universal Design and barrier removal including ADA Standards Tech Sheets, videos, and Tech Packs on issues related to medical facilities, bathrooms, entrances, and parking (Click on "Publications").

The Center for Universal Design

North Carolina State University, College of Design

Box 8613

Raleigh, NC 27695-8613

800-647-6777

www.design.ncsu.edu/cud

This Center provides technical assistance, education, and information on making homes and facilities more accessible. The web site contains "Bright Ideas," a list of accessibility solutions, and many free online publications (Click on "Publications").

Center for Inclusive Design and Environmental Access

School of Architecture and Planning

University of Buffalo

Buffalo, NY 14214-3087

716-829-3485

www.ap.buffalo.edu/~idea

This non-profit organization promotes accessibility and Universal Design through education, technical assistance, training, consulting, and design advocacy. Publications available on their web site include:

Adaptive Environments, Inc.

374 Congress Street

Suite 301

Boston, MA 02210

617-695-1225 (V/TTY)

www.adaptiveenvironments.org

Health Promotion Resource Guide 7

Effective and appropriate methods of communication are essential in providing services to people with disabilities. Sensitive and respectful interaction with people with disabilities is the first step to effective communication. Many people with disabilities also require communication aids because traditional methods of communication, such as speech, telephone, or standard print materials cannot be accessed. The listed resources offer methods and information to assist health promotion programs to communicate effectively with people with disabilities.

This 40-page booklet by the North Carolina Office on Disability and Health provides information on disability awareness, communication aids and alternate formats, inclusive materials, and media relations. It is available on the NCODH web site or in printed format.

North Carolina Office on Disability and Health

FPG Child Development Institute, University of North Carolina at Chapel Hill

Campus Box 8185

Chapel Hill, NC 27599-8185

FAX: 919-966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

These guidelines, developed by the Iowa Department of Public Health, contain information on communicating with people who have a range of disabilities, cognitive disorders, hearing impairments, muscle disorders, vision impairments, and information on developing user-friendly web sites.

Bureau of Disability and Injury Prevention

Iowa Department of Public Health

Lucas Building

Des Moines, IA 50319-0075

515-281-6646

www.idph.state.ia.us/sa/disprev

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This 18-page guide by June Issacson Kailes offers important tips in assuring communication access to a wide audience including the use of visual aids, sign language interpreters, captioning, assistive listening devices, and providing alternate formats.

June Isaacson Kailes

Disability Policy Consultant

6201 Ocean Front Walk, Suite 2

Playa del Rey, CA 90293-7556

310-821-7080

www.jik.com

The office provides a series of publications related to interacting and communicating with people with disabilities that are available on the NY State Department of Health web site. Publications include:

New York State Office on Disability and Health

New York State Department of Health

Empire State Plaza, 511 Corning Tower

Albany, New York 12237

518-474-2018

www.health.state.ny.us/nysdoh/prevent

This publication presents basic guidelines for interacting with people with different disabilities and is available on the Indiana Governor’s Planning Council for People with Disabilities web site.

Indiana Governor’s Planning Council for People with Disabilities

Harrison Building

143 West Market Street, Suite 404

Indianapolis, IN 46204

317-232-7770

www.in.gov/gpcpd/

Health Promotion Resource Guide 9

This publication, available on the United Cerebral Palsy web site, is one of numerous disability awareness publications. The web site also contains information on interacting with people with cognitive disabilities, physical disabilities, vision loss, speech impairments, mental illness, or people who may be Deaf or hard of hearing. (Click on "Media & Public Awareness," then "Etiquette Tips").

United Cerebral Palsy

1660 L Street, NW, Suite 700

Washington, DC 20036

800-872-5827

www.ucp.org

This brochure is available from the Alexander Graham Bell Association for the Deaf and Hard of Hearing and can be found on their web site. (Click on "Hearing Loss Information", then "Online Brochure").

AG Bell

3417 Volta Place, NW

Washington, DC 20007

202-337-5220

202-337-5221 (TTY)

www.agbell.org

This booklet contains guidelines on appropriate language usage and portrayal of persons with disabilities and is available from the Research and Training Center on Independent Living.

Research and Training Center on Independent Living

University of Kansas

1000 Sunnyside Ave, Room 4089 Dole

Lawrence, KS 66045-7555

785-864-4095

www.rtcil.org

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This federal agency ensures that people with disabilities have the same opportunities as everyone else to telecommunicate through the provision of information on communication aids and regulation of telecommunication equipment and services. The FCC web site contains information and publications in the following areas:

FCC

445 12th Street SW

Washington, DC 20554

888-225-5322

888-835-5322 (TTY)

www.fcc.gov/cib/dro

As a part of providing technical assistance, training, and research on accessible design, The Access Board develops guidelines on issues relating to communication aids and accommodations as regulated by the ADA and other accessibility laws. Publications include:

The Access Board

1331 F Street, NW, Suite 1000

Washington, DC 20004-111

800-872-2253

800-993-2822 (TTY)

www.access-board.gov

Newly required by the Federal Communications Commission, Speech-to-Speech Relay (STS) allows those with speech disabilities who are hard to understand on the telephone a new option for communication. The STS new web site contains information on STS and a directory of state phone numbers.

www.stsnews.com

Health Promotion Resource Guide 11

This organization provides information and activities to increase telecommunications and media access to people who are Deaf, late deafened, hard-of-hearing, and Deaf-Blind. Publications include a national directory of TTY numbers, handbook of suggested etiquette for using a TTY, and guides for using a TTY.

TDI

8630 Fenton Street, Suite 504

Silver Springs, MD 20910-3803

301-589-3786

301-589-3006 (TTY)

www.tdi-online.org

RID is a professional organization for interpreters for the Deaf that provides training, certification, and ethical guidelines. Their web site contains publications and other information on interpretation.

RID National Office

333 Commerce Street

Alexandria, VA 22314

703-838-0030

703-838-0459 (TTY)

www.rid.org

This publication provided by the Job Accommodation Network outlines the requirements under the ADA and provides answers to common questions about interpreters. The publication is available on the Job Accommodation Network web site.

Job Accommodation Network

800-526-7234 (V/TTY)

www.jan.wvu.edu

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This organization provides numerous resources related to vision loss including publications addressing the accessibility of printed materials. (Click on "Publications and Resources," then "Educational Publications," then "Promoting Accessibility and Independent Living"). Publications include:

Lighthouse International

111 East 59th Street

New York, NY 10022-1202

800-829-0500

212-821-9713 (TTY)

www.lighthouse.org

This membership organization provides information and referral on all aspects of low vision and blindness. Their web site contains resources on Braille and other accessible formats. (Click on "Helpful Resources").

American Council of the Blind

1155 15TH Street, NW, Suite 1004

Washington, DC 20005

800-424-8666

www.acb.org

This organization provides information and referral on many areas of blindness and low vision including a wide variety of information on Braille. The web site lists publications that provide information on using and providing Braille as an alternative format including Braille transcription services.

National Federation of the Blind

1800 Johnson Street

Baltimore, MD 21230

410-659-9314

www.nfb.org

Health Promotion Resource Guide 13

This organization provides information and education to those who prepare Braille and provides Braille materials to persons who are blind or with low vision. The association also provides Braille transcription services.

National Braille Association

3 Townline Circle

Rochester, NY 14623-2513

585-427-8260

www.nationalbraille.org

This organization is an educational resource for individuals who are unable to read standard print because of a disability and provides audio recordings and electronic versions of textbooks and other educational or reference materials. RFB&D’s Custom Recording Service is a fee-based service that helps businesses, government agencies, and other organizations convert printed materials into accessible formats for employees and consumers.

RFB&D20 Roszel RoadPrinceton, NJ 08540866-RFBD-585 www.rfbd.org

The W3C Web Accessibility Initiative web site contains helpful articles and tools for Internet accessibility. The site is one of the most complete sources of technical assistance on accessible web page design.

Massachusetts Institute of Technology Laboratory for Computer Science 200 Technology Square Cambridge, MA 02139

617-253-2613

www.w3.org

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A Project of the Center for Public Broadcasting and WGBH, the National Center for Accessible Media works to expand access to present and future media. The center provides information on web site accessibility and a downloadable web access symbol.

WGBH

125 Western Ave

Boston, MA 02134

617-300-3400

www.wgbh.org/wgbh/pages/ncam

This is an online program developed by the Center for Applied Special Technologies to evaluate the accessibility of web pages. It is considered the minimum standard for accessibility.

Center for Applied Special Technologies

978-531-8555

978-539-3110 (TTY)

www.cast.org/bobby

The Trace Research and Development Center promotes access to telecommunications and information technology. Programs include Rehabilitation Engineering and Research

Centers on Information Technology Access and Telecommunications Access and Universal Design projects.

Trace Research and Development Center

University of Wisconsin-Madison

5901 Research Park Boulevard

Madison, WI 53719-1252

608-262-6966

608-263-5408 (TTY)

http://trace.wisc.edu

Health Promotion Resource Guide 15

Health resources for people with disabilities traditionally focus on preventing secondary conditions (preventable complications of disability) or on self-care and living with a disability. While these resources are very important and contribute to the health of people with disabilities they can be limited in scope. Recent research and federal efforts to increase the health and wellness of people with disabilities have led to an increase in resources on broader health promotion programming for people with disabilities. The resources provided in this section address this intermix of issues related to disability and a healthy lifestyle. Additional resources on health promotion and disability are included throughout this guide within specific topic areas.

The Disability and Health Program has led many of the efforts to prevent secondary conditions and promote the health and wellness of people with disabilities through national funding, research, advocacy, and public health leadership. The CDC funds state capacity building projects to address the health promotion needs of people with disabilities. These state projects can be an important resource for identifying existing and future health promotion efforts in a state or region. In addition to state projects, the CDC funds various research projects related to health and health access and three National Information Centers. This Division also leads efforts to include people with disabilities in public health policies and practices, including the integration of disability issues within Healthy People 2010.

National Center for Birth Defects and Developmental Disabilities4770 Buford Highway MS F-35 Atlanta, Georgia 30341

(770) 488-7080 www.cdc.gov/ncbddd/dh/

• Arkansas • New Jersey • South Carolina

• California • New Mexico • Vermont

• Iowa • New York • Virginia

• Illinois • North Carolina • Washington

• Massachusetts • Oregon

• Montana • Rhode Island

Links to State Projects can be found at the CDC web site.

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The Center serves as a national clearinghouse to gather, organize, and consolidate existing information and resources on physical activity for people with disabilities, and facilitate dissemination to consumers, practitioners, and disability and service organizations. A more detailed description is found in the physical activity section of this guide.

Web site: www.ncpad.org

This Center is the first to provide limb loss information on a national basis to consumers, families, and providers. The Center maintains a large database of literature and referral sources to respond to the needs for information and referral, publications, prosthetic resources, and peer support. Information venues include a magazine for consumers and providers, peer support groups, and a web site.

Web site: www.amputee-coalition.org/nllic

This Center is designed to help improve the quality of life for people with paralysis. The facility houses a staff of information specialists, a library, and a web site to provide educational materials, referral services, and self-help guidance to those living with paralysis, their families, and caregivers.

Web site: www.paralysis.org

This RRTC conducts research and provides training to support and promote the health and wellness of people with long-term disabilities. The web site contains information on various topics related to health promotion including healthy lifestyles, recreation and physical activity, managed health care, assistive technology, complementary and alternative medicine, nutrition, and barriers to health care.

Rehabilitation Research and Training Center

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207

503-494-3534

www.healthwellness.org

Health Promotion Resource Guide 17

This 8-week curriculum was developed by the Rural Institute on Disability to address secondary conditions and health behaviors among people with disabilities. The curriculum is based on the assumption that goal setting and problem solving provide a framework for a healthy lifestyle. The curriculum is structured as a ten-chapter workbook and is designed for implementation in an Independent Living setting with peer interaction.

The University of Montana, Rural Institute

52 Corbin

Missoula, MT 59812

406-543-9356

www.livingwellweb.com

This guides provides a broad view of health promotion and spinal cord injury, including areas such as nutrition, smoking cessation, physical fitness, and stress management. The book contains educational handouts, resources, and personal accounts of issues related to health promotion.

Aspen Publishers, Inc.

7201 McKinney Circle

Frederick, MD 21701

800-447–1717

www.aspenpublishers.com

This network is a web-based information source for people with spinal cord injuries, families, and professionals. The project has developed a series of SCI InfoSheets, which are typically 4-6 pages and written at different knowledge levels and for different audiences and contain information on conditions that may be experienced by individuals with a spinal cord injury. InfoSheet titles include:

UAB RRTC on Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

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The research department at Craig has developed online educational tools to improve the health of individuals with spinal cord injuries. The web site contains an online interactive health assessment tool and an extensive collection of articles on health and wellness. (Click "SCI Health and Wellness"). Articles include:

Craig Hospital Research Department

3425 South Clarkston Street

Englewood, CO 80110

303-789-8308

www.craighospital.org

This organization provides numerous educational materials on living with a disability and preventing secondary conditions for individuals with multiple sclerosis and spinal cord injury. Materials include Clinical Practice Guidelines, which are designed for professionals, and Consumer Guides. These materials are available on the PVA web site. Topics include:

PVA

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

Health Promotion Resource Guide 19

This organization provides information and resources on many topics related to Multiple Sclerosis. The web site contains numerous brochures on specific conditions that can be experienced by individuals with MS, such as spasticity, fatigue, vision problems, pain, speech problems, bowel and bladder problems, and cognitive problems (Click "library," then "brochures," then "managing specific issues").

National Multiple Sclerosis Society

733 Third Avenue

New York, NY 10017

800-344-4867

www.nationalmssociety.org

These booklets, developed by the Research and Training Center on Independent Living, address the prevention and management of secondary conditions that affect individuals with sensory and motor disabilities. Booklet topics include the following:

The Research and Training Center on Independent Living

University of Kansas, Life Span Institute

4089 Dole

Lawrence, KS 66034-2930

913-864-4095

www.lsi.ku.edu/rtcil/

This booklet is designed to help personal care assistants (PCA) working with the person with SCI. It gives the PCA instructions for giving proper health care assistance that can help prevent medical complications. A daily schedule/checklist is provided.

UAB RRTC on Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

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This book is designed to provide self-care tips to promote independence and well-being. Topics include stress, nutrition, exercise, and sexuality along with other issues relevant to MS. It is available from the Paralyzed Veterans of America (PVA).

PVA

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

This consumer-oriented guide provides tips and strategies to living with Post-Polio - an often misdiagnosed condition. The book is available from the National Rehabilitation Hospital.

National Rehabilitation Hospital

Center for Health & Disability Research1016 16th Street, N.W., Suite 400Washington, DC 20036202-466-1900

www.nrhchdr.org

This popular guide has been updated and expanded to include information on health promotion and wellness. Topics include substance abuse, exercise, alternative medicine, and staying healthy. This book is available from Paralyzed Veterans of America.

PVA

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

3rd Health Promotion Resource Guide 21

This manual contains practical information for anyone with a spinal cord injury, family member, or health professional. The manual covers 29 topics related to living with a spinal cord injury and maintaining health and wellness. The publication is available from the Institute for Rehabilitation Research.

The Institute for Rehabilitation Research

Baylor College of Medicine

1333 Moursund Drive, D-112

Houston, TX 77030-3405

713-797-5947

pcornell@bcm.tmc.edu

This book written for youth with Spina Bifida contains information and resources about living with Spina Bifida. Topics cover issues such as health and personal care, relationships, transitions, and healthy living practices.

Woodbine House

6510 Bells Mill Road

Bethesda, MD 20817

800-843-7323

www.woodbinehouse.com

A monthly subscription newsletter that monitors, reviews, and reports on resources for independent living. Each concise, information-packed issue features short topical articles, reviews, and news about free, inexpensive, and hard-to-find books, pamphlets, videotapes, online sources, and organizations. The web site contains information on numerous health and independent living Internet links and includes resources by state.

Disability Resources Monthly

Four Glatter Lane

Centereach, NY 11720

631-580-0290

www.disabilityresources.org

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Based on a research study at Stanford University, this book includes the input of hundreds of people with long-term health conditions. The book contains sections on nutrition, exercise, sexuality, working with health-care professionals and the health care system, and information on specific conditions.

Bull Publishing Company

PO Box 208

Palo Alto CA 94302-0208

650-322-2855

www.bullpub.com

This book provides basic information on managing and treating pain and stiffness associated with a variety of forms of arthritis. It contains information on exercise, alternative therapies, and ways to live a healthier life with arthritis.

Arthritis Foundations

P.O. Box 7669

Atlanta, GA 30357

800-283-7800

www.arthritis.org

Health Promotion Resource Guide 23

People with disabilities are less likely to be physically active than people without disabilities, yet they have similar needs to promote health and prevent disease. Along with much of the general population, people with disabilities are looking toward a variety of ways of increasing physical activity such as daily activities, less strenuous exercise, and recreation. This broad understanding of physical activity is reflected in the resources listed below.

NCPAD is a comprehensive and valuable collection of resources and information on a broad array of issues related to physical activity and disability. The center is primarily web-based, but offers toll-free access to information specialists. The web site contains the following:

These and other resources are continually updated. Information specialists can help with information not available on the web site.

NCPAD

University of Illinois at Chicago

1640 West Roosevelt Road, Suite 711

Chicago, IL 60608-6904

800-900-8086

www.ncpad.org

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This consumer educational organization houses the National Limb Loss Information Center providing access to an information specialist and an online library of resources including numerous articles on exercise and fitness (Click on "Information Center," then "Virtual Library"). The ACA web site also includes a listing of exercise videos available for purchase (Click on "ACA Marketplace").

ACA

900 East Hill Avenue, Suite 285

Knoxville, Tennessee 37915-2568

888-AMP-KNOW

888-267-5669

www.amputee-coalition.org

The UCP web site contains many resources related to sports and leisure, including exercise. Online documents such as, Exercise Principles and Guidelines for Persons with Cerebral Palsy and Neuromuscular Disorders, provide valuable information (Click on "Sports & Leisure" under "Channels").

UCP

1660 L Street, NW, Suite 700

Washington, DC 20036

800-872-5827

www.ucp.org

This curriculum is designed to improve the health and wellness of adults with developmental disabilities through education and development of personal exercise and nutrition goals and action plans. The curriculum was designed as a 12-week, 36 session program but specific modules can be adapted and customized to fit individual needs. The curriculum is available from the Rehabilitation Research Center on Aging and Developmental Disability (RRTCADD).

RRTCADD

University of Illinois at Chicago

1640 West Roosevelt Road

Chicago, IL 60608 –6904

800-996-8845

www.uic.edu/orgs/rrtcamr

Health Promotion Resource Guide 25

The ADA web site provides numerous educational resources on exercise and healthy living for individuals with diabetes. Resources available online include articles, brochures, and books to motivate individuals to exercise.

American Diabetes Association

1701 North Beauregard Street

Alexandria, VA 22311

800-DIABETES (342-2383)

www.diabetes.org

This consumer-directed guide provides exercises for people with all levels of physical disability. The book contains many pictures and illustrations, providing step-by-step descriptions of exercises and activities.

Human Kinetics

P.O. Box 5076

Champaign, IL 61825

800-747-4457

www.hkusa.com

Craig has developed online educational tools to improve the health of individuals with spinal cord injuries. The web site contains an extensive list of health and wellness articles, including exercise, and an online interactive health assessment tool (Click "Spinal Cord Injury," then "Health and Wellness").

Craig Hospital Research Department

3425 South Clarkston Street

Englewood, CO 80110

303-789-8308

www.craighospital.org

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This publication provides guidelines and suggestions to assist fitness facilities to become more welcoming and useable for people with disabilities and a broad client base including older adults. It includes sections on welcoming people with disabilities, facility accessibility features with illustrations, selecting accessible equipment, and assisting people with disabilities.

North Carolina Office on Disability and Health

UNC-CH, CB 8185

Chapel Hill, NC 27599-8185

Fax: (919) 966-0862

www.fpg.unc.edu/~ncodh

This magazine, formerly Fitness World, is read by a large number of fitness professionals and has addressed issues of exercise, disability, and facility accessibility. The web site contains all of the archived articles which can be accessed after a simple registration process. Articles such as, ADA Compliance for Pools and Wet Areas and Strength Training Equipment for Special Populations can be found along with other articles in the following topic areas, "Aquatics, "Equipment," "Special Groups, " and "Older Adults" (Click "Library of Articles").

Fitness Management

4160 Wilshire Blvd.

Los Angeles, CA 90010

www.fitnessmanagement.com

This book is written for exercise trainers, providing exercise protocols for a wide variety of chronic health conditions, diseases, and disabilities. The book provides an overview and recommendations for exercise programming and testing for each disability.

Human Kinetics

P.O. Box 5076

Champaign, IL 61825

800-747-4457

www.hkusa.com

Health Promotion Resource Guide 27

This publication is used as the training manual for a course developed by Disabled Sports USA to train fitness professionals to work with individuals with disabilities. It includes an overview of specific disabilities and information on techniques and guidelines for aerobic, strength, and flexibility training.

Human Kinetics

P.O. Box 5076

Champaign, IL 61825

800-747-4457

www.hkusa.com

This booklet, developed by the RRTC on Independent Living, discusses why physical activity is important for people with disabilities and recommends strategies to become more physically active. It also talks about barriers to exercise and presents five different activity categories – aerobic exercise, muscular strength and endurance, weight-bearing exercise, and skill-related exercise.

University of Kansas, Research and Training Center on Independent Living

1000 Sunnyside Avenue

Room 4089, Dole Center

Lawrence Kansas, 66045

785-864-4095

www.lsi.ku.edu/rtcil/

The Surgeon General’s report on physical activity and health changed the way Americans were told to approach physical activity. The CDC web site contains this document in addition to many others on physical activity (Click on "Health Topics A-Z", then "Physical Activity and Health"). The web site also contains the publication, Ready, Set, It’s Everywhere You Go. Because of the broad and achievable definition of physical activity, this planning and information tool can be easily adapted to promote physical activity among people with disabilities.

Centers for Disease Control and Prevention

1600 Clifton Road

Atlanta, GA 30333

800-311-3435

www.cdc.gov

28 Health Promotion Resource Health

Shape Up America is a non-profit organization developed to promote healthy weight and increased physical activity. It involves a broad-based coalition of industry, medical/health, nutrition, physical fitness and related organizations, and experts. Shape Up America stresses simple changes in dietary choices and exercise habits. The web site is designed to provide support and information on fitness, weight management, and the link between diabetes and obesity.

www.shapeup.org

Through their activities, ACSM works to increase public awareness about the positive aspects of physical activity. The ACSM web site contains numerous publications that provide important information on exercise including information for older adults. The "Publications" section of the web site contains educational brochures, and additional information can be found under "ACSM Public Information" (Click on "ACSM Healthy Activity Updates").

American College of Sports Medicine

401 West Michigan Street

Indianapolis, IN 46202

317-637-9200

www.acsm.org

NIA provides health and exercise information that can be found via the web site search engine using the keyword, "exercise" (Click "Health Information", then "Publications"). In addition to booklets and fact sheets, NIA also has an exercise video and book entitled, Exercise: A Guide for the National Institute on Aging and the National Aeronautics and Space Administration. This book provides very practical information and guidelines that can be easily adapted for anyone.

NIA

Building 31, Room 5C27

31 Center Drive, MSC 2292

Bethesda, MD 20892

301-496- 1752

www.nia.nih.gov

Health Promotion Resource Guide 29

This organization has recently added a lot of information to their web site on health and wellness for individuals over 50 years old, but much of the information applies to all ages. The wellness series Keep Active: Get Movin’ provides numerous articles on exercise and related issues (Click on "Health and Wellness").

AARP

601 E Street NW

Washington, DC 20049

800-424-3410

www.aarp.org

PVA provides many sports and recreation opportunities in addition to providing online information. The online publications, entitled A Guide to Wheelchair Sport and Recreation and Live Life to the Fullest: A Guide to PVA Sports and Recreation Program provide an initial source of information.

PVA

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

This organization is the national governing body for a large number of sports. It often hosts competitions, clinics, and maintains numerous local chapters throughout the United States and can be an important source of information for adapted sports.

Disabled Sports USA

451 Hungerford Drive, Suite 100

Rockville, MD 20850

301-217-0960

www.dsusa.org

This magazine focuses on wheelchair sports and recreation opportunities, equipment, and competition.

2111 East Highland Avenue, Suite 180

Phoenix, AZ 85016-4702

602-224-0500

www.sportsnspokes.com

30 Health Promotion Resource Health

This magazine contains articles and information on recreation and sports in addition to exercise, nutrition, and other health promotion topics.

2276 Rosedene Road

St. Ann’s, ON L0R 1Y0

905-957-6016

www.activelivingmagazine.com

This catalog contains adaptive exercise, sports, and recreation equipment available for purchase, as well as a good overview of the types of equipment available.

Access to Recreation

8 Sandra Court

Newbury Park, CA 91320-4302

800-634-4351

www.quadcontrol.com

This booklet is designed to be used by individuals with a disability to guide them through the process of identifying recreation activities that can increase their physical activity.

North Carolina Office on Disability and Health

UNC-CH, CB 8185

Chapel Hill, NC 27599-8185

Fax: (919) 966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

Known for their competitions for individuals with cognitive disabilities, Special Olympics has expanded to include a health agenda through the Healthy Athletes Initiative. These include vision, hearing, and oral health screening available through some Special Olympics events.

Special Olympics

1325 G Street NW, Suite 500

Washington, DC 20005

202-628-3630

www.specialolympics.org

Health Promotion Resource Guide 31

The National Center on Accessibility focuses primarily on accessibility as it relates to recreation, parks, and tourism. Major activities include providing technical assistance, developing resources and training materials, and conducting educational programs. They publish Access Today, a free publication providing updates about current developments in the areas of accessibility and recreation.

National Center on Accessibility

2805 East 10th Street, Suite 109

Bloomington IN, 47408

812-856-4422

812-856-4421 (TTY)

www.ncaonline.org

This book addresses the issue of inclusion and provides strategies and guidelines to ensure that people with disabilities are given equal access to community recreation opportunities.

Brookes Publishing

P.O. Box 10624

Baltimore MD 21285-0624

800-638-6775

www.brookespublishing.com

This publication by the Institute for Community Inclusion provides practical tools to assist recreation professionals in creating inclusive recreation opportunities for people with disabilities. The guide contains handouts, checklists, resources, and other educational tools.

Institute for Community Inclusion

Children’s Hospital

300 Longwood Ave.

Boston, MA 02115

617-355-6506

www.communityinclusion.org

32 Health Promotion Resource Health

This web site contains information on all areas of therapeutic recreation including professional contacts and links to national organizations. Two national organizations, American Therapeutic Recreation Association and National Therapeutic Recreation Society, both have links from this web site.

www.recreationtherapy.com

This organization addresses many areas of physical activity for the general population. An organizational sub-group, American Association for Active Lifestyles and Fitness, focuses on the needs of underrepresented groups. AAHPERD has published several books related to people with disabilities, such as Play and Recreation for Individuals with Disabilities and Leisure Opportunities for Individuals with Disabilities: Legal Issues. The AAHPERD web site contains some information on adapted physical education (Click on "AAALF").

AAHPERD

1900 Association Drive

Reston, VA 20191-1598

800-213-7193

www.AAHPERD.org

This web site, designed for physical education teachers, provides an extensive list of information and resources in the area of adapted physical education (Click on "Adapted Physical Education").

PE Central

P.O. Box 10262

Blacksburg, VA 24062

http://pe.central.vt.edu

This book provides information to physical education teachers on working with students with disabilities. It includes information on assessment, activities, and specific disabilities.

McGraw-Hill Higher Education

2460 Kerper Boulevard

Dubuque, IA 52001

800-338-5578

www.mhhe.com

Health Promotion Resource Guide 33

General nutrition needs are similar for people with and without disabilities making traditional sources of nutrition information equally applicable for people with disabilities. In some cases additional nutrition resources related to specific disabilities may be used in conjunction with these general resources. While specific nutrition needs are similar, the ability to shop frequently for fresh produce and cook and prepare meals may limit the ability of an individual to have healthy eating habits. It is important to consider ability to prepare meals, adaptive cooking tools, and kitchen accessibility when considering the nutrition needs of people with disabilities. Additional nutrition resources may be found in "Disability and Healthy Living" and "Physical Activity" sections.

This fact sheet from the Research and Training Center on Rural Rehabilitation Services addresses many of the nutrition issues relevant for people with developmental disabilities. The fact sheet discusses over-nutrition, under-nutrition, staffing issues, and suggestions for change. It is available on the RTC web site.

RTC on Rural Rehabilitation Services

University of Montana Rural Institute

52 Corbin Hall

Missoula, MT 59812-7056

888-268-2743

www.ruralinstitute.umt.edu/rtcrural/health/Nutrition

34 Health Promotion Resource Health

Craig has developed numerous publications to improve the health of individuals with spinal cord injuries. The web site contains an extensive list of health and wellness articles and an online interactive health assessment tool (Click "SCI Health and Wellness"). Nutrition articles include:

Craig Hospital Research Department

3425 South Clarkston Street

Englewood, CO 80110

303-789-8308

www.craighospital.org

This web-based information source for people with spinal cord injuries, families, and professionals has developed a series of SCI InfoSheets, which are typically 4-6 pages and written at different knowledge levels and for different audiences. An InfoSheet on nutrition for consumers and professionals is available on this web site.

UAB RRTC in Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

This series of 6 fact sheets on healthy eating for individuals with spinal cord injury is available on the Rehabilitation Research and Training Center on Health and Wellness web site. (Click on "Health Info," then "Nutrition").

Rehabilitation Research and Training Center on Health and Wellness

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207

503-494-3534

www.healthwellness.org

Health Promotion Resource Guide 35

This Rehabilitation and Research Center on Arthritis provides information on nutrition and living with arthritis. The web site contains articles on nutrition topics such as diet supplements, preventing osteoporosis with nutrition and exercise, food allergies, and general nutrition guidelines. (Click on "Living Well").

Missouri Arthritis RRTC

130 A P Green, DC 330.00

One Hospital Drive

Columbia, MO 65212

www.muhealth.org/~arthritis

The National Limb Loss Information Center, part of the ACA, contains numerous consumer-focused articles on nutrition from their In Motion magazine. Many of the articles can be found on the ACA web site.

ACA

900 East Hill Avenue, Suite 285

Knoxville, Tennessee 37915-2568

888-AMP-KNOW

888-267-5669

www.amputee-coalition.org

This curriculum aims to improve the fitness and health of adults with developmental disabilities through education and development of personal exercise and nutrition goals and action plans. The curriculum was designed as a 12-week program, but individual modules can be adapted and customized to fit individual needs. The curriculum is available from the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (Click on "Clearinghouse on Aging and Developmental Disability).

RRTCADD

University of Illinois at Chicago

1640 West Roosevelt Road

Chicago, IL 60608 –6904

800-996-8845

www.uic.edu/orgs/rrtcamr

36 Health Promotion Resource

The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles This comprehensive guide for educating children and adults with Down syndrome about nutrition and healthy lifestyles covers areas of concern such as breast and bottle feeding, basic nutrition, celiac disease, weight management, fitness, and more.

Woodbine House

6510 Bells Mill Road

Bethesda, MD 20817

800-843-7323

www.woodbinehouse.com

Basic information and guidelines related to nutrition and eating after stroke are available from the NSA web site (Click "Recovery & Rehab").

National Stroke Association

9707 E. Easter Lane

Englewood, CO 80112

800-787-6537

www.stroke.org

This video provides information on a healthy diet with emphasis on the special needs of people with spinal cord injuries. This video is available from the Rancho Los Amigos Medical Center.

Rancho Los Amigos Research and Education Institute, Inc.

P.O. Box 3500

Downey, CA 90242

310-940-7165

This article from the Spina Bifida Association of America explains the causes of obesity and special concerns for individuals with Spina Bifida. The article also discusses obesity prevention and weight reduction.

Spina Bifida Association of America

4590 MacArthur Blvd. NW, Suite 250

Washington, DC 20007-4226

202-944-3295

www.sbaa.org

National Resource Center

800-621-3141

Health Promotion Resource Guide 37

This RRTC provides information and resources on neuromuscular diseases. The RRTC web site contains numerous online publications including information on nutrition as it relates to dietary interventions.

RRTC in Neuromuscular Diseases

Medical School, Department of PM&R, TB 191

University of California

Davis, CA 95616

530-752-2903

www.rehabinfo.net

This publication developed by the Muscular Dystrophy Association addresses the nutrition needs of individuals with ALS. Topics include swallowing, diet, and alternate feeding methods.

Muscular Dystrophy Association - USA

National Headquarters

3300 E. Sunrise Drive

Tucson, AZ 85718

(800) 572-1717

www.mdausa.org

This organization of food and nutrition professionals promotes optimal nutrition and well-being for all people through education and awareness. The ADA web site contains an extensive collection of nutrition resources and fact sheets on all areas of food types, healthy eating, food safety, and weight management. (Click on "Healthy Lifestyle," then on "Nutrition Fact Sheets").

ADA

216 W. Jackson Blvd.

Chicago, IL 60606

312-899-0400

www.eatright.org

Consumer Nutrition Information Line

800-366-1655

38 Health Promotion Resource Health

The FDA provides information about nutrition through the Center for Food Safety and Applied Nutrition (CFSAN). The CFSAN web site contains numerous fact sheets and documents on topics such as food preparation and safety, dietary supplements, and nutrition and weight loss in addition to information about nutrition for women and seniors. (Click on "Consumer Advice").

Center for Food Safety and Applied Nutrition

5100 Paint Branch Parkway

College Park, MD 20740-3835

www.cfsan.fda.gov

As a part of the U.S. Department of Agriculture, the Center’s web site contains information on dietary supplements, dietary guidelines, and the food guide pyramid. The web site also contains an extensive collection of resource lists on topics such as nutrition and cancer, nutrition and diabetes, nutrition and cardiovascular disease, and weight control. (Click on "FNIC Resource Lists").

Food and Nutrition Information Center

USDA

National Agricultural Library, Room 304

10301 Baltimore Avenue

Beltsville, MD 20705-2351

301-504-5719

www.nal.usda.gov/fnic

The American Heart Association web site provides guidelines on healthy eating and lifestyle habits to reduce risk of heart disease. Information on food habits and cholesterol is just as relevant for people with and without disabilities. (Click on "Healthy Lifestyles"). The web site also contains numerous resources on nutrition and the prevention of heart attacks and stroke including consumer education materials and cookbooks. (Click on "Publications").

American Heart Association National Center7272 Greenville Avenue Dallas, TX 75231

800-242-8721

www.americanheart.org

Health Promotion Resource Guide 39

This organization provides education and awareness to prevent osteoporosis and promote bone health. Because nutrition is a key element in preventing osteoporosis, the foundation web site contains information on nutrition. (Click on "Prevention").

National Osteoporosis Foundation

1232 22nd Street NW

Washington, DC 20037-1292

202-223-2226

www.nof.org

This cookbook is designed for people with a variety of disabilities to help them cook independently. Information about the cookbook, including testimonials, can be found on the web site.

Eileen Laird

Cooking Made Easy

P.O. Box 2117

Boone, NC 28607-2117

www.apptechnc.net/~cme

This cookbook containing over 200 recipes was designed for people who have chewing or swallowing difficulties. More information on the cookbook including testimonials can be found on the web site.

J Randy Wilson

P.O. Box 2190

Glenwood Springs, CO 81602

800-843-2409

www.rof.net/yp/randyw

This cookbook was designed for people who cannot read or comprehend regular cooking instructions. It is available from the Advocacy & Resource Center. (Click on Independent Living Resources, "cooking skills.")

ARC / Advocacy & Resource Center665 136th Ave. # 90Holland, MI 49424616-738-8570

www.arc-resources.org

40 Health Promotion Resource Health

This article provides information for someone with a visual impairment or with diabetes about meal planning, estimating food portions, and kitchen safety. It includes a list of suppliers of low vision equipment and other resources.

www.diabetes-self-management.com

This Internet database on assistive technology and adaptive equipment available for people with disabilities contains descriptions and manufacturer information on many types of adaptive cooking aids.

ABLEDATA

8630 Fenton Street, Suite 930

Silver Springs, MD 20910

800-227-0216

www.abledata.com

This fact sheet provides helpful lists of utensils and adaptations that can make cooking and meal preparation easier. The fact sheet is available on the Louisiana Assistive Technology Access Network web site.

www.latan.org/facts2

The Center for Universal Design promotes accessibility in public and private facilities including residential housing and provides information and guidelines for creating accessible spaces. The center provides publications that address issues of kitchen planning and design for use by people with disabilities. (Click on "Publications").

The Center for Universal Design

North Carolina State University, School of Design

Box 8613

Raleigh, NC 27695-8613

800-647-6777

www.design.ncsu.edu/cud

Health Promotion Resource Guide 41

This booklet is available online from Paralyzed Veterans of America. It contains basic design considerations and specifications for different areas of a kitchen.

PVA

801 18th Street, NW

Washington, DC 20006-3517

(800) 424-8200

www.pva.org

This line of assistive devices is designed and manufactured by Maddak, Inc. The online catalog contains numerous daily living aids including a variety of devices to make cooking easier.

Maddak, Inc.

661 Route 235

Wayne, NJ 07470

(973) 628-7600

http://63.125.198.12/index.asp

This catalog contains an extensive collection of assistive devices including kitchen utensils and accessories. (Click on "Everyday Products").

Maxi-Aids

42 Executive Blvd

Farmingdale, NY 11735

800-522-6294

www.maxiaids.com

This brand kitchen and household accessories are available with grips that are larger and easier to use. Good Grips are marketed to the general population and available in most retail stores. The Oxo web site contains a complete product list.

www.oxo.com

42 Health Promotion Resource Health

Substance abuse prevention and treatment is an important issue for people with disabilities. Like other health promotion needs, the prevention and treatment of substance abuse problems for people with disabilities is often limited by program and communication barriers. The resources include information available on substance abuse and specific disabilities in addition to resources designed to improve access to substance abuse prevention and treatment programs for people with disabilities.

This organization encompasses The Rehabilitation Research and Training Center on Drugs and Disability and several programs focusing on the treatment and prevention of substance abuse among people with disabilities. SARDI has developed numerous education and training materials and manuals and offers a web-based training course on substance abuse and disability. (Click on "Products and Publications"). In addition to these materials, the web site also contains online brochures, including:

SARDI

School of Medicine

Wright State University

P.O. Box 927

Dayton, OH 45401-0927

937-775-1484

www.med.wright.edu/citar/sardi

Health Promotion Resource Guide 43

This organization promotes awareness and education about substance abuse among people with disabilities. It works to enhance access to services, information, education, and prevention through the collaborative efforts of individuals and organizations involved in the Access Unlimited Coalition. The web site contains links to other substance abuse articles and resources.

NAADD

2165 Bunker Hill Drive

San Mateo, CA 94402-3801

650-578-8047

www.naadd.org

This guide was developed to help researchers, professionals, and people with disabilities to locate research and training materials relating to substance abuse and disabilities. All the resources in this guide were developed by projects funded by the National Institute on Disability and Rehabilitation Research. The guide contains a listing of books and book chapters, fact sheets and brochures, conference papers and proceedings, journal articles, newsletters, project reports, training manuals, and video and audio tapes.

National Center for the Dissemination of Disability Research

800-266-1832

www.ncddr.org

This resource guide was compiled by the Center for Substance Abuse Prevention and produced by the National Clearinghouse for Alcohol and Drug Information. The resource guide contains a list of prevention materials, articles and reports, and organizations and programs. It can be found on the clearinghouse web site.

The National Clearinghouse for Alcohol and Drug Information

P.O. Box 2345

Rockville, MD 20847-2345

800-729-6686

800-487-4889 (TDD)

www.health.org/govpubs/MS461

44 Health Promotion Resource Health

Craig has developed publications to improve the health of individuals with spinal cord injuries. The web site contains an extensive list of health and wellness articles, including alcohol abuse. (Click "SCI Health and Wellness").

Craig Hospital Research Department

3425 South Clarkston Street

Englewood, CO 80110

303-789-8308

www.craighospital.org

HealthResources@craighospital.org

This kit was developed for professionals working with people who experienced a traumatic brain injury. It contains clinical materials and information intended to help identify substance abusers and develop effective plans for education and prevention. The kit is available from the National Resource Center for TBI.

National Resource Center for TBI

Medical College of Virginia Campus of Virginia Commonwealth University

P.O. Box 980542

Richmond, VA 23298-0542

804-828-9055

www.neuro.pmr.vcu.edu/materials

This consumer report from the Research and Training Center on Traumatic Brain Injury provides individuals with TBI, family members, and professionals information on substance abuse.

Research and Training Center on Traumatic Brain Injury

Department of Rehabilitation Medicine, Box 1240

Mt. Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029

www.mssm.edu/tbinet

Health Promotion Resource Guide 45

This video contains information on the effects of alcohol and medication use. It discusses the responsible use of alcohol when taking prescription medication. The video is available from The Institute for Rehabilitation Research (TIRR).

TIRR Library

Baylor College of Medicine

1333 Moursund Drive, D-112

Houston, TX 77030-3405

713-797-5947

pcornell@bcm.tmc.edu

As a part of Sister Kenny Rehabilitation Services, the Institute developed a series of fact sheets in 1991 on substance abuse and disability. The following fact sheets are available from the Institute:

Sister Kenny Institute

800 East 28th Street, Station 49

Minneapolis, MN 55408-3799

612-863-4466

www.allina.com/ahs/ski.nsf

This consumer resource guide helps people with spinal cord injury and health professionals understand the health consequences and safety issues associated with alcohol and drug use. The emphasis is on preventing alcohol and drug abuse and providing assistance to those who may be abusing substances. The guide is available from Paralyzed Veterans of America.

Paralyzed Veterans of America

801 18th Street, NW

Washington, DC 20006-3517

800-424-8200

www.pva.org

46 Health Promotion Resource Health

This Rehabilitation Research and Training Center examines issues of aging with a spinal cord injury including health changes, psychological reaction, family needs, and job accommodation. Materials addressing substance abuse issues include:

RRTC on Aging with Spinal Cord Injury

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242

562-401-7402

www.agingwithsci.org

This series of booklets contains information for professionals about the implications of substance use and abuse on individuals with brain injury. The booklets cover topics including screening, behavior change, and counseling.

Ohio Regional Traumatic Brain Injury Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

480 West 9th Street

1166 Dodd Hall

Columbus, OH 43210

This web site, though not associated with Alcoholics Anonymous, contains numerous resources and information on accessibility of Alcoholics Anonymous meetings. The site also contains a list of articles on books related to Deaf and hard of hearing persons and substance abuse.

www.dhh12s.com

This organization provides resources for people who are Deaf or hard of hearing, their families, and professionals. The web site provides information on kinds of substance abuse, national directories, and tips for preventing and recovering from substance abuse.

Substance and Alcohol Intervention Services for the Deaf

Rochester Institute of Technology, August Center

115 Lomb Memorial Drive

Rochester, NY 14623-5608

585-475-4978

www.rit.edu/~257www/

Health Promotion Resource Guide 47

This book published by the National Association of the Deaf discusses many aspects of substance abuse recovery for persons who are Deaf or hard of hearing. The book addresses issues of accessibility of AA meetings and other treatment programs. The book is available from the National Association of the Deaf.

National Association of the Deaf

814 Thayer Avenue

Silver Spring, MD 20910-4500

301-587-1788

301-587-1789 (TTY)

www.nad.org

This organization is committed to improving the conditions and opportunities for children and families to live a safe, drug-and-violence free environment that encourages healthy lifestyles. They provide information and programs to prevent substance abuse among all children, with some projects specifically addressing prevention among children and youth with disabilities. Such programs include Project Oz, a curriculum for grades K-12, and Silent Storm, a video addressing the problem of substance abuse among people with disabilities.

Prevention First

1806 Highway 35

Oakhurst, NJ 07755

732-663-1800 www.preventionfirst.net

AA provides basic information on the accessibility of AA meetings and inclusion of people with disabilities in AA activities. The AA web sites contains documents that provide guidelines to local AA groups including, Carrying the Message to the Deaf Alcoholic and Serving Alcoholics with Special Needs. (Click on "Fellowship Services," then "AA Guidelines").

Alcoholic Anonymous

Grand Central Station

P.O. Box 459

New York, NY 10163

www.aa.org

48 Health Promotion Resource Health

This organization works to improve accessibility of substance abuse programs by providing technical assistance to drug and alcohol programs in California through The Alcohol, Drugs, and Disability Technical Assistance Project. The organization has also developed resources for drug and alcohol programs to provide access and services to people with disabilities. Publications include:

Progressive Research and Training for Action

2809 Telegraph Avenue, Suite #208

Berkeley, CA 94705

510-705-8918

www.prta.com

This report from the National Association on Alcohol, Drugs and Disability released in 1999 presents findings about and recommendations to improve the quality and accessibility of substance abuse prevention and treatment services.

National Association on Alcohol, Drugs, and Disability

2165 Bunker Hill Drive

San Mateo, CA 94402-3801

650-578-8047

www.naadd.org

Published by the Substance Abuse and Mental Health Services Administration, this document is available online from the National Clearinghouse for Alcohol and Drug Information. The publication contains information on screening, treatment, and other issues of service delivery including accessibility.

The National Clearinghouse for Alcohol and Drug Information

P.O. Box 2345

Rockville, MD 20847-2345

800-729-6686

800-487-4889 (TDD)

www.health.org/govpubs/BKD28

Health Promotion Resource Guide 49

This inpatient program specializes in the treatment of individuals with chemical dependency who are Deaf or hard of hearing. The program provides technical assistance, training, and materials related to substance abuse and individuals who are Deaf or hard of hearing. Materials available from this organization include the videos, Dreams of Denial and An American Sign Language Interpretation of the Twelve Step Program, and manuals such as, Clinical Approaches and Relapse Prevention Guide.

Minnesota Chemical Dependency Program for Deaf and Hard of Hearing Individuals

2450 Riverside Avenue South

Minneapolis, MN 55454

800-282-3323 (V/TTY)

www.mncddeaf.org

This Rehabilitation Research and Training Center, focusing on issues relevant to American Indians, has developed numerous resources on substance abuse issues. Publications include:

American Indian RRTC

Institute of Human Development

University Affiliated Programs

Northern Arizona University

P.O. Box 5630

Flagstaff, AZ 86011-5630

928-523-4791

928-523-1695 (TDD)

www.nau.edu/ihd.airrtc

50 Health Promotion Resource Health

In addition to experiencing many of the same health concerns as the general population women with disabilities, like other minority groups or special populations, may also have other needs that require different services and supports. Women with disabilities are less likely to receive necessary routine screenings and examinations and can face many physical and attitudinal barriers to health care services. Many providers also overlook the health and wellness needs of women with disabilities. New emphasis on the health of women with disabilities and a broader understanding of the experiences of these women has led to an increase in research and the resources available. General resources related to the health of women with disabilities are presented in this section, while more specific issues such as aging, cancer screening, violence, and sexuality are found in those sections of this guide.

This comprehensive collection of resources on all areas of women’s health and contains a large section specifically addressing the health issues of women with disabilities. The information is available through the NWHIC web site in addition to a call center. Resources are included on the following topics:

NWHIC

www.4women.gov

800-994-WOMAN (9662)

888-220-5446 (TDD)

Health Promotion Resource Guide 51

This research center provides extensive information on the health experiences of women with disabilities. Results from the National Study of Women with Physical Disabilities areused to educate consumers, professionals, and policy makers. In addition to the results from this extensive study, the web site contains Athena newsletter addressing issues of health promotion and wellness. Many other resources on health and wellness issues are being added to the web site. (Click on "Health and Wellness"). Topics found on the web site include:

CROWD

3440 Richmond Ave., Suite B

Houston, TX 77046

800-44-CROWD

713-960-0505

www.bcm.tmc.edu/crowd

Based at the Rehabilitation Institute of Chicago, the Health Resource Center provides information, support, individual consultation and assistance, and referral for women with disabilities. The quarterly newsletter, Resourceful Women, provides current information and in-depth analysis of issues relevant to women with disabilities.

Health Resource Center for Women with Disabilities

Rehabilitation Institute of Chicago

345 East Superior Street, First Floor

Chicago, IL 60611

312-238-1051

www.rehabchicago.org/community/hrcwd

This organization conducts research related to disability policy, including projects involving women with disabilities (Click on "Areas of Expertise, then "Disability Policy"). BPA has also published many resources on the health of women with disabilities.

Berkeley Policy Associates

440 Grand Avenue, Suite 500

Oakland, California 94610-5085

510-465-7884

510-465-4493 (TDD) www.bpacal.com

52 Health Promotion Resource Health

This Canadian based organization contains many resources on women with disabilities available through their web site. Issues such as parenting, communicating with health providers, health, and abuse are addressed through online brochures and publications. (Click on "Publications").

DAWN Ontario

975 McKeown Ave., Unit 5A, Suite 162

North Bay, ON P1B92P Canada

705-494-9078

http://dawn.thot.net

This web-based information source for women with disabilities includes many resources on a variety of health topics. Information sheets with additional resources are provided on the following topics: pregnancy, breast health, parenting, sleep, nutrition, medications, and osteoporosis.

Villanova University – College of Nursing

800 Lancaster Ave.

Villanova, PA 19085

610-519-4922

www.nursing.villanova.edu/womenwithdisabilities

This special edition magazine for women with disabilities features articles on many areas of health and wellness. Some of the topic areas include: health through the ages, leisure, relationships, physical activity, special health concerns, nutrition, going to the doctor, parenting, and advocacy. The magazine contains resources and insight into healthy lifestyle choices.

North Carolina Office on Disability and Health

FPG Child Development Institute

University of North Carolina at Chapel Hill

Campus Box 8185

Chapel Hill, NC 27599-8185

Fax : 919-966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

This information kit presents materials from the Disabled Women’s Conference in 1999. Topics include health, sexuality, and violence. The materials are available online and contain presentation text and resource lists.

www.disabilityhistory.org/women

Health Promotion Resource Guide 53

This book contains a comprehensive collection of information and research on many areas of health and wellness for women with disabilities. Chapters discuss issues such as reproductive health, abuse, sexuality, parenting, stress, bowel and bladder function, and fitness.

Brookes Publishing

P.O. Box 10624

Baltimore MD 21285-0624

800-638-6775

www.brookespublishing.com

This guidebook contains information and resources about women and girls with disabilities. Topics include education, employment, health issues, motherhood and reproduction, sexuality, and abuse. The book also contains and overview of literature and listing of resources. (Click on "Publications," then "Gender and Disability").

National Resource Center on Community Integration for People with Mental Retardation

Center on Human Policy

Syracuse University

805 South Crouse Ave.

Syracuse, NY 13244-2280

800-894-0826

315-443-4355

www.soeweb.syr.edu/thechp

This booklet provides clinical guidelines for health care professionals about a variety of topics related to the health care of women with disabilities. The booklet is available in print and online.

North Carolina Office on Disability and Health

FPG Child Development Institute

University of North Carolina at Chapel Hill

Campus Box 8185

Chapel Hill, NC 27599-8185

Fax : 919-966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

54 Health Promotion Resource Health

This workbook is designed for consumers with developmental disabilities and their caregivers to improve direct communication between the health care provider and the person with a disability. The tool kit includes a set of forms for tracking healthcare concerns, procedures, patient visits and interventions.

Wisconsin Council on Developmental Disabilities

PO Box 7851

Madison, WI 53707-7851

608-266-7826

In addition to a section on women with disabilities, this information center contains a vast amount of information on all areas of women’s health that apply to women with disabilities in addition to the general population.

NWHIC

www.4women.gov

800-994-WOMAN (9662)

888-220-5446 (TDD)

This information source of the US Department of Health and Human Services contains resources related to women’s health, especially as it relates to underserved populations.

888-ASK-HRSA (275-4772)

www.ask.hrsa.gov

This book published by Boston Women’s Health Book Collective contains women’s health information from a feminist and consumer perspective. It covers issues relevant to women from diverse ages, racial and ethnic backgrounds, and sexual orientations.

Boston Women’s Health Book Collective

BU-School of Public Health

715 Albany St, W-1, Room 120

Boston, MA 02118

617-414-1230

www.ourbodiesourselves.org

Health Promotion Resource Guide 55

A project of UAB RRTC on Secondary Conditions of Spinal Cord Injury and UAB Model SCI Center, this network is a web-based information source for people with spinal cord injuries, families, and professionals. It contains info sheets addressing numerous issues applicable to men and women, including topics specific to the health of women with spinal cord injuries such as sexuality and pregnancy.

UAB RRTC in Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

Based at the University of Illinois at Chicago, this research program is a source of information related to health issues of women with mental health disabilities. Among other resources listed on the web site, a booklet entitled, Having Our Say: Women Mental Health Consumers/Survivors Identify their Needs and Strengths addresses many health issues (Click on "Women’s Resources).

UIC Mental Health Services Research Program

104 South Michigan Ave, Suite 900

Chicago, IL 60603

312-422-8180

312-422-0706 (TDD)

www.psych.uic.edu/mhsrp

This foundation provides numerous resources for women. The web site contains fact sheets on issues such as menopause, medications, hormones, birth control, pregnancy, and psychosocial issues (Click on "Answer Place", then "Women").

Epilepsy Foundation

4351 Garden City Drive

Landover, MD 20785-7223

800-332-1000

www.epilespsyfoundation.org

56 Health Promotion Resource Health

This organization for people with mental retardation and related developmental disabilities provides numerous educational materials. The fact sheet, Aging with Developmental Disabilities: Women’s Health Issues, addresses many of the specific health issues relevant to women with disabilities.

The Arc of the United States

1010 Wayne Ave., Suite 650

Silver Spring, MD 20910

301-565-3842

Info@thearc.org

www.TheArc.org

This revised curriculum and facilitator’s manual was developed to enable women with mental retardation and other developmental disabilities to become more active participants in their health care. Its primary emphasis is teaching women about reproductive health and breast/cervical cancer screenings.

NC Office on Disability and Health

UNC-CH, Campus Box 8185

Chapel Hill, NC 27599-8185

FAX: 919-966-0862

Email: odhpubs@mail.fpg.unc.edu

www.fpg.unc.edu/~ncodh

A booklet that details the needs for GYN services for women with disabilities, alternative positions for the pelvic exam, transfer methods, and client’s rights and responsibilities. Information is explained through easy to understand illustrations and written instructions.

Kathleen Lankasky, Projects Coordinator

UCP of the Golden Gate

1970 Broadway, Suite 600

Oakland, CA 94612

510-832-7430

Health Promotion Resource Guide 57

This booklet for service providers examines ways to improve health programs for women with disabilities. Topics include barriers to service, reproductive health needs, legal issues, service guidelines, strategies, and outreach.

Berkeley Policy Associates

440 Grand Avenue, Suite 500

Oakland, California 94610-5085

510-465-7884

510-465-4493 (TDD)

www.bpacal.com

This extensive list of resources for women with disabilities is available online in text format. The resource packet is a product of a past project of the California Family Health Council.

www.empowermentzone.com/repropak.txt

This resource by the Arc of New Jersey is available in video, audio, and curriculum formats for the purpose of teaching women with disabilities what to expect with pelvic and breast examinations.

The Arc of the United States

1010 Wayne Ave., Suite 650

Silver Springs, MD 20910

301-565-3842

Info@thearc.org

www.TheArc.org

This video for health care professionals reviews transfer methods, positioning, and special considerations related to the gynecologic exams.

UAB RRTC in Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

58 Health Promotion Resource Health

A video and handbook with teacher’s guides and photos. The video takes the viewer through a breast and pelvic exam step-by-step.

Stanfield & Co.

PO Box 1983

Santa Monica, CA 90406

213-395-7466

This handbook prepares women with special needs for self-care in menstruation. It contains illustrated laminated cards and a video.

James Stanfield Company

P.O. Box 41058

Santa Barbara, California 93140

800-421-6534

This organization provides education and accessible breast screening for women with physical disabilities and vision impairments in Alameda and Contra Costa counties of California, leading to development and dissemination of a replicable model of education and service delivery for the nation. BHAWD has developed numerous publications and pamphlets useful to clinicians and consumers.

BHAWD c/o Alta Bates Summit Medical Center

Herrick Campus, Rehabilitation Services, 2001 Dwight Way, 2nd Floor

Berkeley, CA 94704

510-204-4866

510-204-4574 (TDD)

www.bhawd.org

Health Promotion Resource Guide 59

Issues of violence have recently begun gaining recognition as an important health issue for people with disabilities. Violence against people with disabilities can often go undetected because of reliance on others for self-care, limited communication, or limited mobility and inability to escape a violent situation. Violence may also take nontraditional forms such as withholding of medications or assistive devices and therefore go undetected. While many of the resources focus on violence and women with disabilities, many of the same issues apply to men and children with disabilities.

This Canadian organization contains many resources on women with disabilities available through their web site. Issues such as parenting, communicating with health providers, health, and abuse are addressed through online brochures and publications. Publications on violence include the following:

DAWN Ontario

975 McKeown Ave., Unit 5A, Suite 162

North Bay, ON P1B92P Canada

705-494-9078

www.dawn.thot.net

This Internet resource providing information on violence against women is one of the few resources for the general population that addresses the issue of violence against women with disabilities. The web site includes an article, Abuse and Women with Disabilities, which addresses the current research and issues specific to women with disabilities.

www.vaw.umn.edu/Vawnet/disab.

60 Health Promotion Resource Health

This Center provides extensive information on the health experiences of women with disabilities. They have led much of the research on violence and people with disabilities and are a leading resource in the area of violence. Publications on violence include the following:

CROWD

3440 Richmond Ave., Suite B

Houston, TX 77046

800-44-CROWD

713-960-0505

www.bcm.tmc.edu/crowd

This advocacy organization protecting the rights of women provides information on many areas of violence and abuse of women. The web site contains numerous resources, though not specific to women with disabilities, that can be applicable.

NOW Legal Defense and Education Fund

395 Hudson Street

New York, NY 10014

212-935-6635

www.nowldef.org

This manual provides useful information for service providers including topics such as: working with individuals with disabilities, accommodations, and making programs and services accessible.

Center for Research on Women with Disabilities

Independence First

600 W. Virginia St. Suite 301

414-291-7520

www.independencefirst.org/

Health Promotion Resource Guide 61

This is a non-profit organization based in Texas whose purpose is to prevent violence against people with disabilities. The web site provides an extensive list of resources in Texas with some national resources. The web site also contains information on identifying and preventing violence and abuse among people with disabilities.

All Walks of Life

9160 Benthos

Houston, TX 77083

281-495-9226

www.awol-texas.org

Based in Canada, the Center provides some information on violence and abuse among individuals with developmental disabilities. The organization provides a Listserv in addition to resources on violence and disability

J.P. Das Developmental Disabilities Centre

6-123 Education North

University of Alberta

Edmonton AB T6G 2Gs

CANADA

780-492-4505

www.quasar.ualberta.ca/ddc

This collection of materials for violence prevention and education are appropiate for presentations to persons with disabilities, family members, and professionals in crisis intervention and disability services. This curriculum is one of many resources available from SafePlace Disability Services.

SafePlace

P.O. Box 19454

Austin, TX 78760

512-267-7233

www.austin-safeplace.org

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The Beach Center is a research and training center that conducts research, offers training and technical assistance, and disseminates information on family issues when there is a child with a disability in the family. The Center has produced publications dealing with violence and abuse among children with disabilities including:

Beach Center on Families and Disability

1200 Sunnyside Avenue

3111 Haworth Hall

The University of Kansas

Lawrence, KS 66045-7534

785-864-7600

www.beachcenter.org

This document by the National Center for Injury Prevention and Control addresses the problem of violence and provides information on recent research and recommendations.

National Center for Injury Prevention & Control

Centers for Disease Control & Prevention

www.cdc.gov/ncipc

This fact sheet from The Arc provides information sexual abuse among people with developmental disabilities including guidelines on identifying abuse, the effects of abuse, prevention and treatment of abuse. The fact sheet is available on The Arc’s web site.

The Arc of the United States

1010 Wayne Ave., Suite 650

Silver Springs, MD 20910

301-565-3842

Info@thearc.org

www.TheArc.org

Health Promotion Resource Guide 63

The center has materials and projects that address issues of violence against people with disabilities and empower them to recognize, prevent, and address violence. The center has multiple projects that address the issue of violence against women with disabilities by intimate partners and personal assistance providers. Materials such as People with Disabilities: It’s Your Right to Be Safe From Abuse, empower women with disabilities to recognize and address violence.

OHSU Center on Self-Determination

3608 SE Powell Blvd.

Portland, OR 97202

503-232-9154

www.cdrc.ohsu.edu/selfdetermination

This comprehensive training manual’s goal is to increase knowledge and skill among service providers at rape crisis centers, battered women’s programs, and other programs addressing domestic violence and sexual assault. The focus of the training curriculum is on understanding and serving survivors with disabilities covering topics such as: disability as an issue of oppression, servicing survivors with disabilities, accessibility, and resources.

Jane Doe, Inc.

14 Beacon Street, Suite 507

Boston, MA 02108

617-248-0922

www.JaneDoe.org

This curriculum was developed by The Arc of Maryland’s Gender Violence Prevention Research Development team. It addresses violence against women with developmental disabilities, embracing the self-advocacy movement in all aspects of the curriculum. The curriculum includes information about planning for and teaching the program with lesson plans and appendices. Lesson plan topics include sexuality, healthy relationships, sexual harassment and assault, domestic violence, and safety planning.

The Arc of Maryland

410-974-6139

Email: info@thearcmd.org

64 Health Promotion Resource Health

The sexual health of people with disabilities is often ignored in matters of fertility and sexual function, body image, intimacy, and relationships. There are limited resources on all areas of sexuality and disability. Many of the resources that do exist tend to be disability specific, as popular resources for the general population have been slow to accept and include disability- specific information.

This web site is one of the very few resources for the general population related to sexuality and relationships that offers information on disability. The web site contains extensive information on sexuality as it relates to different disabilities and other topic areas such as:

www.sexualhealth.com

This document, developed by the DisAbled Women’s Network (DAWN) provides a consumer perspective on issues of sexuality for women with disabilities. The publication can be ordered from the DAWN web site. (Click on "Publications").

DAWN Ontario

975 McKeown Ave., Unit 5A, Suite 162

North Bay, ON P1B92P Canada

705-494-9078

www.dawn.thot.net

Health Promotion Resource Guide 65

This research center provides extensive information on the health experiences of women with disabilities. Research has led to an increased understanding of the sexuality of women with disabilities. The CROWD web site includes much of this information including issues of body image, sexual functioning, and sexually transmitted diseases.

CROWD

3440 Richmond Ave., Suite B

Houston, TX 77046

800-44-CROWD

713-960-0505

www.bcm.tmc.edu/crowd

This fact sheet developed by the RRTC on Secondary Conditions of Spinal Cord Injury addresses issues of sexuality after a spinal cord injury including function and fertility and is available on their web site.

UAB RRTC in Secondary Conditions in Spinal Cord Injury

1717 6th Avenue South, Room 506

Birmingham, AL 35233-7330

205-934-3283

www.spinalcord.uab.edu

This web site contains various links and topics related to sexuality and disability.

www.geocities.com/HotSprings/7319/sex.htm

This article from the National Information Center for Children and Youth with Disabilities newsletter, News Digest, Vol 1:2 contains information and resources on sex education and children with disabilities. The article can be found on the NICHCY web site.

National Information Center for Children and Youth with Disabilities (NICHCY)

P.O. Box 1492

Washington, DC 20013-1492

800-695-0285

nichcy@aed.org

www.nichcy.org

66 Health Promotion Resource Health

In this book people with disabilities and their partners share intimate experiences and provide insight on specific disabilities and other issues of sex and relationships. The book is available from the New Mobility Bookstore.

www.newmobility.com

This policy brief of the Institute for Child Health Policy raises the awareness of the needs of youth with disabilities when addressing teen pregnancy. It addresses the specific information and support needs to ensure that youth with disabilities receive the same opportunities for healthy sexual development and reproductive health available to all teens.

Center for Policy & Partnerships

Institute for Child Health Policy

5700 SW 34TH Street, Suite 323

Gainesville, FL 32608

888-433-1851

www.ichp.edu

This curriculum by Rebecca Koller provides training in choice-making, self-esteem building, health, safety, and appropriate adult behavior. The manual is designed to complement James Stanfields’s Life Horizons’ I and II slide program.

Choicesrt@aol.com

This education tool features 8 videos and guide for enhancing social skills of people with disabilities. Topics include: Being with Friends, Being with a Date, Being with Housemates, and Being with Authority Figures, Acquaintances and Strangers.

James Stanfield Company

P.O. Box 41058, Santa Barbara, California 93140

800-421-6534

www.stanfiled.com

This international, quarterly newsletter includes articles and columns on self-esteem and sexuality for persons with disabilities.

Sureen Publishing

Box 23102, 124 Welland Ave., St. Catherines,

Ontario, Canada L2R7P6

905-688-2935 FAX

Health Promotion Resource Guide 67

National Resource Center for TBI

Medical College of Virginia Campus of Virginia Commonwealth University

P.O. Box 980542

Richmond, VA 23298-0542

804-828-9055

www.neuro.pmr.vcu.edu

This handbook contains information on sexuality, fertility, and parenting for individuals with spinal cord injuries. It is designed to be easy to read for consumers.

Brookes Publishing Co.

P.O. Box 10624

Baltimore, MD 21285-0624

800-638-3775

www.brookespublishing.com

This booklet provides information about changes and sexual function and fertility that can accompany spinal cord injury. It includes a directory of clinics and centers to treat infertility secondary to spinal cord injury.

The Miami Project to Cure Paralysis

P.O. Box 016960 (R-48)

Miami, FL 33101-6960

305-243-7108

www.miamiproject.miami.edu/mfrp

http://scifertility.com

This consumer report from the Research and Training Center on Traumatic Brain Injury provides individuals with TBI, family members, and professionals information on sexuality after a traumatic brain injury

Research and Training Center on Traumatic Brain Injury

Department of Rehab