Education & Treatment:
Recommendations

Recommendations of
Early Interventionists & Teachers
of Boys with FXS

Strategies/Suggestions

Behavior Management

  • Have a behavior management plan in place that addresses aggression toward self or others
  • Use consistent behavior management
  • Provide guidance in controlling impulsivity
  • Use consistent reinforcers
  • Use stern voice/affect to convey displeasure; be firm
  • Don’t let frustration escalate; allow break for regrouping and calming
  • Be patient, persistent, and loving
  • Read child's cues

Motivators

  • Use hands-on activities involving a variety of senses
  • Alternate quiet and active activities-be flexible in demands for sitting still, use frequent movement breaks
  • Use music and movement to motivate and teach concepts
  • Use favorite toys, activities, praise, and music as motivators and to ease transitions
  • Let the child hold things
  • Build on the strengths and interests of the individual child

Environmental Modification

  • Have a consistent routine with structured activities and a structured environment
  • Provide a personal work space and an area for the child to go to regroup
  • Reduce distractions
  • Provide small teacher-to-student ratio and/or one-on-one instruction
  • Be flexible and give the child choices
  • Use visual cues, modeling, picture schedules

Instructional Strategies

  • Work up to desired skill through successive approximations
  • Consider sensory integration/occupational therapy needs; use sensory diet, work with OT
  • Consider similarities to autism and incorporate appropriate strategies
  • Anticipate schedule/needs and prepare for transitions, new experiences
  • Break tasks down into manageable steps
  • Don't ask for/require direct responses
  • Work on attention, basics
  • Focus on functional/social skills
  • Teach the child how to interact and play

General

  • Learn as much as possible about children with fragile X syndrome
  • Look at the unique characteristics of each child-great variability in boys with fragile X
  • Work with families
  • Respect the need for medication